Epilepsy Association of Utah

Purple Day

South Jordan Proclaims March 26th Purple Day

South Jordan Proclaims March 26th
Purple Day
SALT LAKE CITY, Utah, February 19, 2013 –  On February 19th,
2013, South Jordan Mayor Scott L. Osborne officially proclaimed March 26th,
2013 and every subsequent March 26th, Purple Day in the city.  Following the efforts of Demi Sintz, Purple
Day Ambassador for South Jordan, and the office of the Mayor, the proclamation
is the first to be signed in the state of Utah this year.
12 year old
Sintz became an Ambassador to raise awareness for all the right reasons:
“If you
asked anyone in my school what they would do if they saw someone have a
seizure, I bet most of them wouldn’t have a clue.” Sintz said. “My little
brother has epilepsy. I became a Purple Day Ambassador to be an advocate for my
brother and to help make people more aware about epilepsy. I want people to
know what to do if they see my brother, or anyone else, having a seizure. It
could happen anywhere. It could save a life if you know what to do!”
continued: “I want people to know what a seizure looks like. I want them to
know it will be scary and it will be every time, but you need to be calm. Let
the person know you are there for them. You need to know what to do. I have
learned to be there for my brother and I know it will be ok!”
Epilepsy Association of Utah applauds Demi and the City of South Jordan for
dedicating the day to the 150,000 people of Utah, and their families, who live
with the condition.
Purple Day for Epilepsy is held each year on March 26 and is
dedicated to raising awareness about epilepsy. It helps reduce stigma and
empowers individuals living with epilepsy to take action in their communities.
Purple Day was founded in 2008 by nine-year-old Cassidy Megan of Nova Scotia,
and named after the internationally recognized colour for epilepsy, lavender.
 Purple Day was launched internationally in 2009. The Epilepsy Association
of Nova Scotia and the Anita Kaufmann Foundation in the United States are
the global partners for the Purple Day campaign.  UCB Canada Inc. is the
exclusive Canadian biopharmaceutical partner for the 2012 Purple Day campaign.
For more information, please visit www.purpleday.org
Founded in 1973, The Epilepsy Association
of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for
all individuals living with Epilepsy and seizure disorders. 1 in 26 people will
develop Epilepsy at some time in their lives leading to over 150,000 people in
Utah alone. Epilepsy is the 4th most common neurological disorder in
the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah
offers a public education program, statewide support groups, personal and
professional advocacy, college scholarships, art exhibits, educational
conferences, summer camp and more.  Visit
http://epilepsyut.org for additional
Press Contact:        Lindsey
Email:                    lindsey@epilepsyut.org
Website:                 www.epilepsyut.org

Purple Day Balloon Launch 2012



LAKE CITY, Utah, March 13, 2012 – In its efforts to help increase
global and local Epilepsy awareness, the Epilepsy Association of Utah
(EAU) will celebrate National Purple Day, held annually on March 26th,
by holding a Purple Balloon Launch in Murray City. Each of the hundreds
of balloon will be filled & tied with thoughts, hopes and memories
of everyone, including the 50 million affected worldwide and as many as
150,000 from Utah; and then, released as a symbol of freedom and
independence while each purple balloon finds its way into the world.

Date:     Monday March 26th
Time:     6:00pm
Place:    Murray City Hall Building
    5025 South State Street
    Murray, UT

interested in attending should meet at Murray City Hall at 6:00pm to
prepare for the balloon launch. Admission is free and all ages are
encouraged to participate. More information regarding this and other
scheduled Purple Day events can be found on the Epilepsy Association of
Utah’s website: www.epilepsyut.org

About Purple Day
Purple Day was created by the idea of a 9-year-old girl, Cassidy Megan,
motivated by her own struggles with Epilepsy. Cassidy’s goal was and
continues to be encouraging people to talk about Epilepsy while
dismissing the myths and assuring those with seizures – they are not
alone. Now every year on March 26th,
people all around the world are invited to wear purple and involve
themselves in events in promotional events supporting Epilepsy

About the Epilepsy Association of Utah
Epilepsy Association of Utah provides awareness, education, support
services and advocacy for and in behalf of all those dealing with the
many challenges of Epilepsy/seizure disorders. More information can be
found on their website @ www.epilepsyut.org

A Purple Jolt for Utah’s Purple Day!

The Epilepsy Association of Utah proudly presents “Purple Jolt 2012 Benefit Rock Concert.”  The performance follows the Purple Day Balloon Launch at 6:00 pm, held at Murray City Building.  The group who will be performing is Caroline’s Spine, with special guest Jeremy Anderson.

About Caroline’s Spine:

  • Spine is an alternative American Rock band who has toured the United States and Europe with popular performing artists such as Aerosmith, Nickleback, as well as Kiss.  
  • Spine is a RIAA-certified Gold and has achieve four “Top 40” rock radio hits.  
  • Spine’s music has been used by well-known TV networks such as ESPN, MTV, and Disney.  
  • Spine is, as noted by Yamaha Music, “…one of the top 5 unsigned bands in America.”

The Top Five Caroline’s Spine Songs (via iTunes):

  1. Sullivan
  2. Attention Please
  3. You and Me 
  4. Nothing to Prove
  5. The Light Inside

Sullivan and You and Me both come from Spine’s 1997 album entitled “Monsoon.”  Sullivan is reportedly the band’s most popular song, due to it’s accessible melody and compelling subject matter related to WWII.  You and Me starts out with a slower softer beat than Sullivan, but then turns to quicker tempo and heavier rock, it’s a great song to jam out to and it seems to resonate with the frustrations rough relationships can sometimes bring.

Two years later, Spine released “Attention Please,” where the tracks Attention Please and Nothing to Prove are heard.  Both tracks received high ratings on the Mainstream Rock Tracks chart at #30 and #23, respectively.  Nothing to Prove is probably a personal favorite of mine and all that I can say about it is take a listen to it below.  Attention Please, on the other hand, has a deep grungy sound whom’s chorus seems to question life’s train and where, as passengers, we are going.  That idea seems to ring true for a lot of people who deal with various problems, including seizures and Epilepsy.  Sometimes we wonder why it is that we have certain issues to deal with and it is, indeed, a fair question.  Until we find out why and where we are going, we can do our best to hold on for the ride.     

The last, but definitely not the least, of the top five tracks is The Light Inside from “Work It Out.” It wouldn’t surface until nearly a decade after Spine’s aforementioned album, “Attention Please.”  Nevertheless, the track definitely earned it’s place among the top tracks of Spine’s music.  The music is heavy with awesome beats with deep enlightening lyrics that question, and at the same time seem to encourage, the listener’s ability to go on and continue to do their best despite difficulties they might experience.

Can’t wait to see the band in action?  Well, the countdown is on and the concert is just days away, but until then, feel free to check out this video, from YouTube, of the group singing a song I particularly favor, Nothing to Prove.

Critical Info!
What: Purple Jolt 2012 Benefit Rock Concert
Where: Murray Historic Theatre 
 4961 S. State St., Murray, UT. 84107
When: Monday, March 26, 2012
Time: 7:00 pm
Prepaid Individual: $10
At-The-Door Individual: $12
VIP Table (includes backstage pass to meet the band, food, and private seating) $100
Buy Your Tickets Now!  
Contact: info@epilepsyut.org
Sources and Links:
Jimmy Newquist
Jeremy Anderson 

Winter Rewind

It has been an exciting few months since our last post, all of the events we have held have been successful thus far.  So, lets rewind.

Fall, 2011

UEA was definitely a success, we were able to speak with many educators about Epilepsy Awareness and we invited them to join our interest lists as well as sign up for a free Seizure Smart Presentation.  As teachers and students continue to receive instruction from the presentations, they will have gained a knowledge of how to deal with seizures in the classroom.  That comes with the ability to discourage oppressive and stigmatizing actions as well as comments made by classmates, which allows students to become “Seizure Smart” as well!  Another thing that teachers are equipped with when they learn more about Epilepsy and seizures is the ability to give rescue medication, as directed, for long-lasting seizures.  Lastly, as all people gain from the presentations, they will have gained an awareness for Epilepsy and seizures, connections to activities, events and conferences the Epilepsy Association of Utah hosts, such as Whispers in the Park

Bounty-Hunters and little Luke Skywalker!

Whispers in the Park was our first Halloween carnival this year.  It was simply amazing how much fun everyone had.  Costumes were worn, games were played, costume contests were strutted through, prizes were won, vendors offered their items for sale, and the food was scrumptious.  A pair of Star Wars bounty-hunters even made an appearance.  A good time was had by all!  What was so awesome was that it was a festival where people with Epilepsy and seizures could come and be in a safe place to enjoy each others company.  Free from any sorts of stigma or oppression, people are were very understanding.  Through those gentle whispers, the Epilepsy Association of Utah took the superstition and mysticism out of living with Epilepsy and put those thing where they belonged: Halloween.

Kimmie at Artilepsy

 November brought a busy month for the EAU, the month of awareness began with our second annual Artilepsy art gallary.  Artilepsy is a art gallary dedicated to all types of artists who are affected by Epilepsy or have loved ones who are affected by Epilepsy.  We had a fair few people enter their artwork for Artilepsy.  We had photography, paintings, drawings, quilts, and even faberge eggs!  One of the artists, Kimmie (age 13), submitted a beautiful photo of the “Up” house and won first place in the teen photography category.  Well done!

Jenn, Jeremy, & Kris after Jeremy’s comedic performance

The next day, our second annual Gala was held, this time it was at Noah’s event center.  Several persons very close to persons affected by Epilepsy or affected by Epilepsy themselves spoke at the Gala, including, Dr. Afrah (a U of U Epileptologist), Glenn Fenster (Destinymaker), Mayor JoAnn B. Seghini of Midvale, the parents of Lynsay Lynch (of Laps for Lynsay), Jeremy Anderson (see right) and his comedic performance, Ryan Barnes, and two collegiate scholarship recipients as well as many others who were recognized for their service and support of the Epilepsy Association of Utah.  It was a great night to review what the EAU has been doing and it was encouraging to see how the potential for the Association is growing, as are our programs.  Thanks to the funding raised from the Gala as well as a few grants that have been awarded, the EAU is looking to start a Transportation Assistance program and Prescription Medication Assistance program.  There is even more that is being developed now, but you will just have to keep an eye out for more news!

And the morning after Gala was held, we headed up to the Univerisy of Utah’s Neuroscience building for our Seizure Smart Education Conference.  Speakers included Glenn Fenster, Dr. Afrah, an AEEG specialist, Holly E. Ferrin, as well as a specialist of natural oils and their benefits with seizures and Epilepsy.  

We’ve got a spring that is buzzing with
activities and events, including Purple Day, Caroline’s Spine Concert, Crop Because You Care, and our NEW Camp Neuro Reveolution!  Be on the lookout for our next update (coming soon!).  I
am sure that it will be easy to “Spring Forward” in 2012 with the Epilepsy Association of Utah!

“Like” us on Facebook (Epilepsy Association of UT page); “Friend” us on Facebook (Epilepsy Utah); and follow our Twitter feed for
live updates!  

Thanks everyone, for your continued support!

Midvale Elementary Purple Day

Purple Day at Midvale Elementary was incredibly fun! Princess Amerah came and talked to the kids about her story of accepting yourself.  She also talked about her brother who has seizures. Thank you to Cari who arranged this and to Princess Amerah for sharing your Purple Day Story!