Epilepsy Association of Utah

Get Seizure Smart

Press Release: Epilepsy Association of Utah Announces “Seizure Smart” Education Conference

For Immediate Release

Epilepsy Association of Utah Announces 
“Seizure Smart” Education Conference
SALT LAKE CITY – Monday, May 19, 2014 
The Epilepsy Association of Utah (EAU) announces its annual “Get Seizure Smart!” Epilepsy Education Conference, presenting the latest in epilepsy science and treatment options, as well as tools and resources for those affected by epilepsy. The “Seizure Smart” conference will be held Saturday, June 7, 2014 from 8 a.m. to 4 p.m. at Little America Hotel, 500 South Main Street, Salt Lake City. Individuals with epilepsy, families of those affected, medical personnel, educators, and first responders, as well as the general public, are invited to attend.

Dr. Ian Miller, pediatric neurologist at Miami Children’s Hospital, international expert in treating Dravet syndrome and member of the Dravet Syndrome Foundation’s Professional Advisory Board, will be the keynote speaker and special guest. He is scheduled to discuss the discovery of genetics in epilepsy and the push for research into CBD-based treatment options.

The conference will feature breakout sessions with renowned experts presenting on topics including the complexities of epilepsy, genetics of epilepsy, latest treatment options, alternative therapies, coping and advocacy, managing behaviors and sibling behaviors, mental health, trusts and living wills and patient resources. Several organizations and vendors will be in attendance with tables providing helpful information, a few of which include the Division of Services for People with Disabilities, Hope 4 Children With Epilepsy, Utah Kids, Utah Parent Center, Autism Council of Utah and Brain Balance Centers.

With the recent passage of HB105 “Charlee’s Law” allowing for the possession of high-CBD/low-THC cannabis oil for the treatment of intractable epilepsy in adults and children, the EAU will present the specifics of the new Hemp Extract Registration Program and the safe and effective use of the therapy. Jennifer May, co-founder of Hope 4 Children With Epilepsy, the EAU’s parent advocacy group who lobbied in favor of the bill, will be walking patients through the details of the law and the processes required to gain access to approved extracts for treatment. As the leading provider of high-CBD/low-THC cannabis oil, Realm of Caring’s own Heather Jackson will present information about the oil as a treatment for intractable epilepsy. Realm of Caring is a non-profit organization in Colorado who oversees the cultivation of the Charlotte’s Web plant and its processing and distribution as Alepsia, a non-psychoactive extract infused in oil.

“Our goal with the Seizure Smart Epilepsy Conference is to provide those affected by epilepsy with the tools needed to educate themselves, as well as those around them, and obtain the best treatments possible, whether they be mainstream or alternative,” said April Sintz, EAU Conference Chairperson and H4CE leadership member. “We want to empower people by giving them choices and resources that are available to all of us here in the state of Utah,” Sintz stated.

Cost for the conference is $30 for the public ($15 for EAU members) if registered in advance; an additional $10 charge will apply for those registering at the door. A light breakfast, a catered lunch, and a “loot bag” will be provided for each attendee. Registration is open on the EAU website at http://epilepsyut.org/conference2014.html.

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ABOUT THE EPILEPSY ASSOCIATION OF UTAH 
Founded in 1973, the Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with epilepsy and seizure disorders. One in 26 people will develop epilepsy at some time in their lives, totaling over 100,000 people in Utah alone. Epilepsy is the fourth most common neurological disorder in the US, after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more. Visit http://epilepsyut.org for additional information. 

Media Contact: Jennifer Hardy May 
Email: info@epilepsyut.org 
Website: www.epilepsyut.org 

Get Seizure Smart! Educational Conference(s)


FOR IMMEDIATE RELEASE
Get
Seizure Smart! Educational Conference now held at two locations in Utah!
SALT LAKE CITY, Utah, April 5, 2013 – “Education
is the most powerful weapon which you can use to change the world.” ― Nelson Mandela

Back by popular demand, and expanded by
overwhelming response, the 6th and 7th Get Seizure
Smart! Educational Conference will be held this year, kicking off in Salt Lake
City this May. The Epilepsy Association of Utah (EAU), along with Doctors from
the University of Utah are happy to present this conference, free of charge, to
assist in helping further the understanding of epilepsy, its history,
diagnosis, treatment and daily living with the condition.
Held annually in Salt Lake City for last 5 years,
the EAU recently received outstanding interest in expanding the Conference in
the St. George area.
“After meeting with several interested parties
and Neurologists in St. George, it became very apparent that this Conference
would also need to be held in that area,” said Jenn Whiting, Executive Director
of the Epilepsy Association of Utah, “ With the support of so many people, and
the request of even more, we would have been remiss to not engage the Conference
Committee in establishing a bi-annual Conference at these two locations”.
After the Board vote to expand the conference,
it was decided to move the Salt Lake Conference from chilly November to
blissful, early May. The November date will still be used for the St. George
event when the weather is more temperate.


Date:     Saturday May 4th, 2013
Time:    9:00am- 3:00pm
Place:    University of Utah
             Clinical Neurosciences Center
Auditorium, Level 1
175 N Medical Drive East
Salt Lake City, Utah 84132
   Schedule: 8:00 – 9:00am – Registration
     9:00 – 9:15am – Welome
     9:15 – 10:00am – Dr. Pegah Afra – Epilepsy 101
     10:00 – 10:45am – Dr. Helen Barkan – Treatment Options
     10:45 – 11:00 am – Morning Break
     11:00 – 11:15am – Ambulatory Neurological Services – EEG
     11:15 – 12:00pm – Dr. D. Corydon Hammond – Neurofeedback
     12:00 – 12:30pm – Lunch
     12:30 – 12:45pm – Cyberonics – Vagus Nerve Stimulation (VNS)
     12:45 – 1:15pm – Dr. Kenneth Oliver – Chiropractic Neurology
     1:15 – 1:45pm – TBD – Depression and Epilepsy
     1:45 – 2:00pm – Break
     2:00 – 2:30pm – Attorney Jared Allebest – Employee Rights
     2:30 – 3:00pm – Panel Q & A
                    3:00pm – Closing Remarks              



ABOUT THE EPILEPSY ASSOCIATION OF
UTAH
Founded in 1973, The Epilepsy Association
of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for
all individuals living with Epilepsy and seizure disorders. 1 in 26 people will
develop epilepsy at some time in their lives leading to over 100,000 people in
Utah alone. Epilepsy is the 4th most common neurological disorder in
the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah
offers a public education program, statewide support groups, personal and
professional advocacy, college scholarships, art exhibits, educational
conferences, summer camp and more.  Visit
http://epilepsyut.org for additional information.
Press
Contact:        Lindsey Palmer
Email:                    lindsey@epilepsyut.org
Website:                www.epilepsyut.org