Epilepsy Association of Utah


Laps For Lyndsay

Laps for Lyndsay
Annual walk in memory of Lyndsay Lynch announced.
SALT LAKE CITY, Tuesday, October 1, 2013– On August 31, 2010, seven-year-old Lyndsay Lynch had her last seizure.  It was that seizure that cost the vivacious and bright-eyed Lyndsay her life.
“That year, and every year since, her family, friends, neighbors and even strangers, have walked around the track at Weber State University to keep her memory alive’, said Annette Maughan, President of the Epilepsy Association of Utah, “ And each year, the EAU is there to pay tribute to Lyndsay and her family. Their loss and their dedication is felt deeply at the EAU and we can not thank them enough for all that they do.”
All proceeds from the walk are used to send children with epilepsy to The Association’s Camp Neuro Revolution. This year is especially bitter sweet since Lyndsay would have turned 10 and been eligible to attend camp for the very first time. 
The camp is geared for pre-teens and teens, ages 10 -18 with epilepsy.

Held at the National Ability Center in Park City, the Lynches generous donation in Lyndsay’s name last year enabled almost 25 children to participate in what they never thought possible: Summer Camp!

Please join us at the 2013 Laps For Lyndsay!

When:     Saturday, October 12th 2013
Where:   Weber State University Stewart Stadium
Time:       8:00 am – 12:00 pm
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 100,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more.  Visit http://epilepsyut.org for additional information.
Press Contact:        Lindsey Palmer
Email:                        lindsey@epilepsyut.org
Website:                  www.epilepsyut.or 

Winter Rewind

It has been an exciting few months since our last post, all of the events we have held have been successful thus far.  So, lets rewind.

Fall, 2011

UEA was definitely a success, we were able to speak with many educators about Epilepsy Awareness and we invited them to join our interest lists as well as sign up for a free Seizure Smart Presentation.  As teachers and students continue to receive instruction from the presentations, they will have gained a knowledge of how to deal with seizures in the classroom.  That comes with the ability to discourage oppressive and stigmatizing actions as well as comments made by classmates, which allows students to become “Seizure Smart” as well!  Another thing that teachers are equipped with when they learn more about Epilepsy and seizures is the ability to give rescue medication, as directed, for long-lasting seizures.  Lastly, as all people gain from the presentations, they will have gained an awareness for Epilepsy and seizures, connections to activities, events and conferences the Epilepsy Association of Utah hosts, such as Whispers in the Park

Bounty-Hunters and little Luke Skywalker!

Whispers in the Park was our first Halloween carnival this year.  It was simply amazing how much fun everyone had.  Costumes were worn, games were played, costume contests were strutted through, prizes were won, vendors offered their items for sale, and the food was scrumptious.  A pair of Star Wars bounty-hunters even made an appearance.  A good time was had by all!  What was so awesome was that it was a festival where people with Epilepsy and seizures could come and be in a safe place to enjoy each others company.  Free from any sorts of stigma or oppression, people are were very understanding.  Through those gentle whispers, the Epilepsy Association of Utah took the superstition and mysticism out of living with Epilepsy and put those thing where they belonged: Halloween.

Kimmie at Artilepsy

 November brought a busy month for the EAU, the month of awareness began with our second annual Artilepsy art gallary.  Artilepsy is a art gallary dedicated to all types of artists who are affected by Epilepsy or have loved ones who are affected by Epilepsy.  We had a fair few people enter their artwork for Artilepsy.  We had photography, paintings, drawings, quilts, and even faberge eggs!  One of the artists, Kimmie (age 13), submitted a beautiful photo of the “Up” house and won first place in the teen photography category.  Well done!

Jenn, Jeremy, & Kris after Jeremy’s comedic performance

The next day, our second annual Gala was held, this time it was at Noah’s event center.  Several persons very close to persons affected by Epilepsy or affected by Epilepsy themselves spoke at the Gala, including, Dr. Afrah (a U of U Epileptologist), Glenn Fenster (Destinymaker), Mayor JoAnn B. Seghini of Midvale, the parents of Lynsay Lynch (of Laps for Lynsay), Jeremy Anderson (see right) and his comedic performance, Ryan Barnes, and two collegiate scholarship recipients as well as many others who were recognized for their service and support of the Epilepsy Association of Utah.  It was a great night to review what the EAU has been doing and it was encouraging to see how the potential for the Association is growing, as are our programs.  Thanks to the funding raised from the Gala as well as a few grants that have been awarded, the EAU is looking to start a Transportation Assistance program and Prescription Medication Assistance program.  There is even more that is being developed now, but you will just have to keep an eye out for more news!

And the morning after Gala was held, we headed up to the Univerisy of Utah’s Neuroscience building for our Seizure Smart Education Conference.  Speakers included Glenn Fenster, Dr. Afrah, an AEEG specialist, Holly E. Ferrin, as well as a specialist of natural oils and their benefits with seizures and Epilepsy.  

We’ve got a spring that is buzzing with
activities and events, including Purple Day, Caroline’s Spine Concert, Crop Because You Care, and our NEW Camp Neuro Reveolution!  Be on the lookout for our next update (coming soon!).  I
am sure that it will be easy to “Spring Forward” in 2012 with the Epilepsy Association of Utah!

“Like” us on Facebook (Epilepsy Association of UT page); “Friend” us on Facebook (Epilepsy Utah); and follow our Twitter feed for
live updates!  

Thanks everyone, for your continued support!

Pennies from heaven

Sometimes, the simple things are the best:

“A Penny For Your Thoughts” – here’s my thoughts – Please join me and let’s save as many pennies as possible for 10 weeks during the summer:

From Sunday June 13, 2010 to Sunday August 22, 2010.
(Of course, I promise I won’t tell if you start saving your pennies early!)

After Sunday August 22, 2010 please donate your penny collection to your local Epilepsy Organization or another volunteer organization of your choice that is working hard in your community to help people with epilepsy, sudep, and other issues related to seizure disorders. Your participation is greatly appreciated.
**If you have a large collection of pennies please try to roll them prior to presenting your donation.

If you would like to join us in this event please check it out at Epilepsy Awareness 2009 on Facebook. There will also be a place on the Facebook site listed under “Discussions” after the event if anyone would like to post any details of their participation; name, amount of donation, organization they donated to.

If you have any questions, suggestions, or comments please forward them to me at epilepsyhppresident@hotmail.com

Tracey Alderson, Administrator, Epilepsy Awareness 2009

Yard Sale!

On June 5th Madeline’s Restaurant in South Jordan will be hosting a Yard Sale Fundraiser for the EPILEPSY ASSOCIATION OF UTAH.

The Yard Sale will be held in front of the restaurant at 1133 West South Jordan Pkwy (10600 South) and will run from 8am to 2pm.

If you have anything you would like to donate, please bring it by the restaurant anytime.

As a thank you, Madeline’s will be giving away a free dessert or appetizer for every donation made.

Thank you to Adam and Madeline’s Restaurant for putting this together!

Madeline’s Restaurant
Yard Sale
June 5th
8am – 2pm
1133 W. South Jordan Pkwy (10600 S)