Epilepsy Association of Utah


Press Release: Utah Legalizes Cannabis for Seizure Treatment

Utah Legalizes Cannabis for
Seizure Treatment
Signs Bill – First of Its Kind in Nation
SALT LAKE CITY, Utah- Tuesday, 25 March – Today, many Utah
families cheered as Governor Gary Herbert held an event replicating his signing
of “Charlee’s Law” or HB105, the first bill of its kind allowing cannabis
extract (CBD) oil for treatment of uncontrolled seizures. Based on recommended
use by board certified neurologists, Utah families hope the oil will decrease
or even control their children’s seizures.
Governor Herbert signed the
bill last Thursday and it will go into effect this July. The new law allows
families of children with uncontrolled epilepsy to possess CBD oil,
manufactured from the cannabis plant, in Utah. Where 20 other states have
legalized the use of medical marijuana, this nationally unique law allows for
specific precautions, such as a low psychoactive component of .3 percent THC
(tetrahydrocannabinol). “CBD oil does not cause a ‘high’ and it has absolutely
no abuse potential, yet it could prove to improve quality of life or even save
lives for some of our children,” said Annette Maughan, Epilepsy Association of
Utah’s president.
Charlee’s Law states that families
who bring CBD oil into Utah must take their board certified neurologist’s
recommendation to the Utah Department of Health in order to obtain a permit
once per year. A law enforcement officer may check the validity of permits at
any time. Neurologists recommending the product to their patients must send
their findings to an institution of higher education to study. The law will
have a sunset provision of two years, allowing Utah lawmakers to analyze the
Some Utah lawmakers had concerns that
the product is not yet FDA approved and questioned the known side effects.
Still, the House passed the bill 62-11 and it went on to win a unanimous vote
of 26-0 at the Senate, citing arguments supporting that children with intractable
epilepsy do not have time to wait the five to eight year process of FDA
preliminary research that has been done would show that it has been very
optimistic that we actually increase life span and life potential by decreasing
the seizures by 50 to 100 percent,” said Representative Gage
Froerer, the bill’s sponsor. Maughan stated that the most common side effect is
that it makes children a little sleepy, which is an incredible improvement
compared to the FDA approved and organ destroying medications children
currently take.
“We are thrilled that Utah lawmakers have
researched and recognized the urgency of this matter, while showing an
incredible amount of compassion for Utah’s epileptic children,” said Maughan.
Contact:        Jennifer May
Email:                        info@epilepsyut.org

Website:                  www.epilepsyut.org

New Avenues for Treatment Supported


New avenues for treatment supported
SALT LAKE CITY, Monday, August 26, 2013 – The
Epilepsy Association of Utah (EAU) recognizes the potent nature and reputation
cannabis has gained in recent news.  While
the EAU does not condone the abuse of marijuana or recreational use of marijuana,
we note the medical value and potential the extraction of Cannabidiol (CBD)
from the plant has for the epilepsy community. 
“This isn’t a political
issue and it isn’t an ethical issue; this is a medical and public policy
issue,” says Jennifer May, EAU Professional Advisory Board Member.  She continued, “I never imagined I’d be
advocating for high-CBD cannabis, but watching my son seize every day has
forced me to become educated and realize the potential this plant extract has
for changing lives.”
The EAU believes there is
great benefit in the support of any legislative measures allowing the expansion
of treatment options, specifically any medical grade product derived from the
cannabis plant.
Founded in 1973, The Epilepsy Association
of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for
all individuals living with Epilepsy and seizure disorders. 1 in 26 people will
develop Epilepsy at some time in their lives leading to over 100,000 people in
Utah alone. Epilepsy is the 4th most common neurological disorder in
the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah
offers a public education program, statewide support groups, personal and
professional advocacy, college scholarships, art exhibits, educational
conferences, summer camp and more.  Visit
http://epilepsyut.org for additional information.
Contact:        Annette Maughan
Email:                        annette@epilepsyut.org
Website:                  www.epilepsyut.org