Epilepsy Association of Utah

Annual Conference

Get Seizure Smart! Educational Conference(s)

Seizure Smart! Educational Conference now held at two locations in Utah!
SALT LAKE CITY, Utah, April 5, 2013 – “Education
is the most powerful weapon which you can use to change the world.” ― Nelson Mandela

Back by popular demand, and expanded by
overwhelming response, the 6th and 7th Get Seizure
Smart! Educational Conference will be held this year, kicking off in Salt Lake
City this May. The Epilepsy Association of Utah (EAU), along with Doctors from
the University of Utah are happy to present this conference, free of charge, to
assist in helping further the understanding of epilepsy, its history,
diagnosis, treatment and daily living with the condition.
Held annually in Salt Lake City for last 5 years,
the EAU recently received outstanding interest in expanding the Conference in
the St. George area.
“After meeting with several interested parties
and Neurologists in St. George, it became very apparent that this Conference
would also need to be held in that area,” said Jenn Whiting, Executive Director
of the Epilepsy Association of Utah, “ With the support of so many people, and
the request of even more, we would have been remiss to not engage the Conference
Committee in establishing a bi-annual Conference at these two locations”.
After the Board vote to expand the conference,
it was decided to move the Salt Lake Conference from chilly November to
blissful, early May. The November date will still be used for the St. George
event when the weather is more temperate.

Date:     Saturday May 4th, 2013
Time:    9:00am- 3:00pm
Place:    University of Utah
             Clinical Neurosciences Center
Auditorium, Level 1
175 N Medical Drive East
Salt Lake City, Utah 84132
   Schedule: 8:00 – 9:00am – Registration
     9:00 – 9:15am – Welome
     9:15 – 10:00am – Dr. Pegah Afra – Epilepsy 101
     10:00 – 10:45am – Dr. Helen Barkan – Treatment Options
     10:45 – 11:00 am – Morning Break
     11:00 – 11:15am – Ambulatory Neurological Services – EEG
     11:15 – 12:00pm – Dr. D. Corydon Hammond – Neurofeedback
     12:00 – 12:30pm – Lunch
     12:30 – 12:45pm – Cyberonics – Vagus Nerve Stimulation (VNS)
     12:45 – 1:15pm – Dr. Kenneth Oliver – Chiropractic Neurology
     1:15 – 1:45pm – TBD – Depression and Epilepsy
     1:45 – 2:00pm – Break
     2:00 – 2:30pm – Attorney Jared Allebest – Employee Rights
     2:30 – 3:00pm – Panel Q & A
                    3:00pm – Closing Remarks              

Founded in 1973, The Epilepsy Association
of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for
all individuals living with Epilepsy and seizure disorders. 1 in 26 people will
develop epilepsy at some time in their lives leading to over 100,000 people in
Utah alone. Epilepsy is the 4th most common neurological disorder in
the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah
offers a public education program, statewide support groups, personal and
professional advocacy, college scholarships, art exhibits, educational
conferences, summer camp and more.  Visit
http://epilepsyut.org for additional information.
Contact:        Lindsey Palmer
Email:                    lindsey@epilepsyut.org
Website:                www.epilepsyut.org

Winter Rewind

It has been an exciting few months since our last post, all of the events we have held have been successful thus far.  So, lets rewind.

Fall, 2011

UEA was definitely a success, we were able to speak with many educators about Epilepsy Awareness and we invited them to join our interest lists as well as sign up for a free Seizure Smart Presentation.  As teachers and students continue to receive instruction from the presentations, they will have gained a knowledge of how to deal with seizures in the classroom.  That comes with the ability to discourage oppressive and stigmatizing actions as well as comments made by classmates, which allows students to become “Seizure Smart” as well!  Another thing that teachers are equipped with when they learn more about Epilepsy and seizures is the ability to give rescue medication, as directed, for long-lasting seizures.  Lastly, as all people gain from the presentations, they will have gained an awareness for Epilepsy and seizures, connections to activities, events and conferences the Epilepsy Association of Utah hosts, such as Whispers in the Park

Bounty-Hunters and little Luke Skywalker!

Whispers in the Park was our first Halloween carnival this year.  It was simply amazing how much fun everyone had.  Costumes were worn, games were played, costume contests were strutted through, prizes were won, vendors offered their items for sale, and the food was scrumptious.  A pair of Star Wars bounty-hunters even made an appearance.  A good time was had by all!  What was so awesome was that it was a festival where people with Epilepsy and seizures could come and be in a safe place to enjoy each others company.  Free from any sorts of stigma or oppression, people are were very understanding.  Through those gentle whispers, the Epilepsy Association of Utah took the superstition and mysticism out of living with Epilepsy and put those thing where they belonged: Halloween.

Kimmie at Artilepsy

 November brought a busy month for the EAU, the month of awareness began with our second annual Artilepsy art gallary.  Artilepsy is a art gallary dedicated to all types of artists who are affected by Epilepsy or have loved ones who are affected by Epilepsy.  We had a fair few people enter their artwork for Artilepsy.  We had photography, paintings, drawings, quilts, and even faberge eggs!  One of the artists, Kimmie (age 13), submitted a beautiful photo of the “Up” house and won first place in the teen photography category.  Well done!

Jenn, Jeremy, & Kris after Jeremy’s comedic performance

The next day, our second annual Gala was held, this time it was at Noah’s event center.  Several persons very close to persons affected by Epilepsy or affected by Epilepsy themselves spoke at the Gala, including, Dr. Afrah (a U of U Epileptologist), Glenn Fenster (Destinymaker), Mayor JoAnn B. Seghini of Midvale, the parents of Lynsay Lynch (of Laps for Lynsay), Jeremy Anderson (see right) and his comedic performance, Ryan Barnes, and two collegiate scholarship recipients as well as many others who were recognized for their service and support of the Epilepsy Association of Utah.  It was a great night to review what the EAU has been doing and it was encouraging to see how the potential for the Association is growing, as are our programs.  Thanks to the funding raised from the Gala as well as a few grants that have been awarded, the EAU is looking to start a Transportation Assistance program and Prescription Medication Assistance program.  There is even more that is being developed now, but you will just have to keep an eye out for more news!

And the morning after Gala was held, we headed up to the Univerisy of Utah’s Neuroscience building for our Seizure Smart Education Conference.  Speakers included Glenn Fenster, Dr. Afrah, an AEEG specialist, Holly E. Ferrin, as well as a specialist of natural oils and their benefits with seizures and Epilepsy.  

We’ve got a spring that is buzzing with
activities and events, including Purple Day, Caroline’s Spine Concert, Crop Because You Care, and our NEW Camp Neuro Reveolution!  Be on the lookout for our next update (coming soon!).  I
am sure that it will be easy to “Spring Forward” in 2012 with the Epilepsy Association of Utah!

“Like” us on Facebook (Epilepsy Association of UT page); “Friend” us on Facebook (Epilepsy Utah); and follow our Twitter feed for
live updates!  

Thanks everyone, for your continued support!

EAU Annual Conference

Years ago, every Saturday morning, children everywhere were glued to their television sets, transfixed by Scooby Doo and his latest mischievous mystery. Not much has changed for some of those children, mysteries still abound, only there is no talking dog around to solve the puzzle.

On Saturday November 6th, The EAU and University of Utah will attempt to unravel some of the mysteries surrounding Epilepsy. Whether you are newly diagnosed with Epilepsy or have been living with it for decades, this Saturday is designed to help you and your loved ones become better acquainted with the latest diagnostic tools, pharmacology treatments and surgical updates.

Scheduled speakers will include:

Awais Riaz, MD, PhD, Assistant Professor, Department of Neurology, University of Utah
Pegah Afra, MD, Assistant Professor, Department of Neurology, University of Utah
Paul House, MD, Assistan Professor, Department of Neurosurgery, University of Utah
Francis Filloux, MD, Professor, Department of Neurology, University of Utah
H. Steve White, PhD, Professor, Pharmacology and Toxicology, University of Utah
Kris Hansen, President, Epilepsy Association of Utah

Please join us for this free conference.

Saturday November 6th, 2010
Clinical Neurosciences Building
Auditorium, Level 1
175 N Medical Drive East
Salt Lake City, UT 84132