Epilepsy Association of Utah

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Seize: The Story – Eli Daniels

Eli Daniels was born on January
23, 2012.  He was born four weeks early
at 3 pounds 10 ounces. He was taken to the NICU in Logan, Utah, where he stayed
until February 8, 2012 when he was taken to PCMC by ambulance. He stayed in
PCMC NICU until mid April when he was allowed to come home. Eli was then
diagnosed with Laryngomalacia, a cleft in the soft palate, significant hearing
loss and blindness. 

Eli has always been small but
defying doctors’ expectations. We have been told on many occasions that he is tougher
than he appears especially after his multiple surgeries and hospital visits.
After many inconclusive tests to determine what is his underlining condition
is, Eli underwent a MRI in October of 2012. The MRI showed Eli suffered a
stroke early in pregnancy.  After four
months, Eli started having spasms. These were later diagnosed as Infantile
Spasms. After trying a couple of steroid treatments, the EEG no longer showed
spasm activity. After two months the seizures came back but now it has been
determined to be another form a seizures and not infantile spasms.


 While there are no clear answers as to what is
causing all of his trials, Eli is a happy, stubborn little boy. He has defied
odds in his 16 months and continues to impress everyone he meets. While Eli may
still be small, at not quite 15 pounds, he is learning and growing. He leaves a
mark on everyone’s heart that he meets. He truly is a “small but mighty” little
boy.

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