Each Month, the EAU spotlights an individual on our website, blog and other social media outlets. We invite you to share your story (Submit here) of living with epilepsy and what you have done to overcome adversity.
This month we spotlight:
School was hard! I lost almost all of my friends because they thought I was “contagious” and when I explained to (my at the time best friend) that I wasn’t she just said “okay” and walked away. See if you were friends with me you couldn’t be popular. It took me awhile to really realize what happened with my best friend; at the time everything was crashing in on me. I got made fun of all the time; it was so bad my mom put me in home hospital. When I was having a lot of seizures I would be home with a tutor but when they would get under control I would go back to normal school. I then went to a charter school in eighth grade just so I could get away from all the kids that knew about my epilepsy and would make fun of me. When I was sixteen I had brain surgery and had a piece of the brain removed to try and stop my seizures, so I was out of school my sophomore year. I then went back to school my junior year of high school. But with only the people from my elementary knowing me, well you would think high school kids would be more mature, no some of them still made their stabs at me I was just not as affected by it and knew how to stand up for myself.
About two years after my brain surgery I was going to get my driver’s license, the day before I was going to take the driver’s test I had another seizure. My parent’s and I started looking into other options. We then decided to have a VNS (Vagus Nerve Stimulator) implanted. We decided to have the VNS surgery (which is a device like a pace maker that is hooked to the vagus nerve and sends shock waves through my brain every 3 minutes for 30 seconds to try to stop or lessen the severity of my seizures or after affects), about six months to a year later the VNS stopped working and I gave up all hope. Nothing had worked and there was nothing left to do; pills didn’t work and there was no surgery left.
I never thought that I would get married because of my epilepsy but when I was twenty one I found the greatest guy in the world, who loved me for me and didn’t care that I had epilepsy like a lot of the other guys out there. So he proposed and I said “yes” and we were married about six months later. A little while later I got pregnant and I had an ectopic pregnancy (where the baby is growing in the Fallopian tube), but two years later I got pregnant again and had a daughter in May 2014.
Granted I have been talking about my epilepsy, so it hasn’t been the best of memories. My life hasn’t been all bad. I have an amazing family, daughter, husband, and friends, have had awesome vacations to Bear Lake, Pinedale, Disney World/Florida, Disney Land, Island Park and many more. I have had a great life with many bad experiences but I wouldn’t take them back for anything because they have made me who I am today.
I hope this helps someone out there in some way!
Taylor A. Zobell Ferguson