Everyday, we hear from people with Epilepsy about how lonely it was when they first were diagnosed, we hear about the fear they had in telling their friends and family and we hear about the shame some of them carry with them. But they are not alone, their friends and family will understand once they know what Epilepsy really is, and they do not need to be ashamed, Epilepsy is not a punishment, it is a condition. A condition that effects over 100,000 people in Utah and that’s not including the people they know that are touched by it. Epilepsy has many elements to it and all of them can be managed with a healthy attitude and a supportive set of friends and family.
How you approach your life with Epilepsy is how others will also approach your Epilepsy. An open dialogue can go a long way to acceptance and understanding. We have assembled some suggestions and facts that are meant to be used as guidelines to help you enjoy your life with Epilepsy and help others become comfortable with it as well.
Resources for Newly Diagnosed Patients
Your heart sinks. You are stunned. You may cry but mostly, you feel isolated. Suddenly, you also feel cut off from the rest of the world and yet, that everyone ‘knows’ and will treat you differently. The first thing you need to know is that you are not alone, new research indicates that over 9 million people in the United States also live with Epilepsy and a majority of them manage their seizures through medication, diet and/or exercise. You are not your Epilepsy. Epilepsy is what you have; it is not who you are. Read more…
Resources for Living with Epilepsy
Adults & Seniors | Teens | Children
Family and Peer Information
There are many people who know and love someone with epilepsy. There may be many challenges ahead, but we have established a community of caring people who are here to offer support and education about this illness. Learn more…