Epilepsy Association of Utah

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Epilepsy Association of Utah & Hope 4 Children With Epilepsy – Federal Call to Action

For Immediate Release 

Epilepsy Association of Utah &
Hope 4 Children With Epilepsy
Federal Call to Action
SALT LAKE CITY, Utah – Tuesday,
August 26, 2014
One year ago today, the
Epilepsy Association of Utah became the first epilepsy organization in the
United States to take a stance in support of expanding treatment options to
include high-CBD/low-THC cannabis extracts. Since that time, dozens of organizations have
followed suit, leading to the passage of HB105 “Charlee’s Law” in Utah and
similar bills across the nation.
The Epilepsy Association of Utah and Hope 4 Children with Epilepsy
have withheld public support of federal legislation until today. We have now
chosen to openly support federal bill H.R. 5226: Charlotte’s Web Medical Hemp
Act of 2014, sponsored by Rep. Scott Perry (R – PA), and will work toward its
passage. The bill proposes to exclude industrial hemp and cannabidiol (CBD)
from the definition of marijuana, granting those suffering with epilepsy access
to the treatment according to the laws of their own states. Industrial hemp is
defined as cannabis with THC content below .3%.
“A federal change in policy regarding cannabis is essential,’ said
Annette Maughan, President and CEO of the Epilepsy Association of Utah, “My son
can be treated with cannabis openly in Utah, but he can’t go to Disneyland with
his family? All because his oil is grown in the United States? The incongruity
of that is staggering.”

We welcome the addition of other federal bills regarding the rescheduling of
cannabis and reserve the right to evaluate each on the merits of its potential
impact. The federal stance that cannabis holds no medicinal value places it on
Schedule 1 of the DEA’s list of controlled substances:

“Schedule I
drugs, substances, or chemicals are defined as drugs with no currently accepted
medical use and a high potential for abuse. “

With the published reports of success in treating epilepsy, among other
conditions (http://hope4childrenwithepilepsy.com/research-links/), the claim of
“no medical use” is no longer valid; therefore, cannabis should be rescheduled.
Because cannabis is currently listed on Schedule 1, research and compassionate
use are very difficult to accomplish, even with the involvement of medical
specialists and research institutions. This needs to change.
We call upon all federal legislators to join us in this very
critical and urgent cause by supporting and/or co-sponsoring H.R. 5226:
Charlotte’s Web Medical Hemp Act of 2014. Likewise, we urge our state
legislators, as well as all citizens of Utah and the United States, to let
their voices be heard in support of those suffering with intractable epilepsy
in our country.
The language for H.R. 5226: Charlotte’s Web Medical Hemp Act of
2014 can be found at https://www.govtrack.us/congress/bills/113/hr5226/text.
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ABOUT THE
EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, the Epilepsy Association of Utah is a
501(c)(3) charity dedicated to enhancing the quality of life for all
individuals living with epilepsy and seizure disorders. One in 26 people will
develop epilepsy at some time in their lives, leading to over 100,000 people with
epilepsy in Utah alone. Epilepsy is the fourth most common neurological
disorder in the US, after migraine, stroke, and Alzheimer’s disease. The
Epilepsy Association of Utah offers a public education program, statewide
support groups, personal and professional advocacy, college scholarships, art
exhibits, educational conferences, summer camp and more.
ABOUT HOPE 4
CHILDREN WITH EPILEPSY
We are parents of children with severe forms of epilepsy. The
seizures take a toll on our children’s overall health, ability to function, and
quality of life, leaving them with increased risk for sudden death. We
desperately
need new treatment options. We lobby to make high-CBD/low-THC
cannabis extract available in Utah, and across the United States, to those who
suffer with intractable epilepsy. The extract is not smoked and does not cause
a “high”, but it can save the lives of children.
Press Contact: Jennifer May
Phone:                    801-400-0046
Email:                      jennifer.h.may@gmail.com
Website:               www.epilepsyut.org
Website:               www.hope4childrenwithepilepsy.com

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