Epilepsy Association of Utah

Press Release

Epilepsy Association of Utah Announces New Executive Officers and Board Members

 

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FOR IMMEDIATE RELEASE: Epilepsy Association of Utah Announces New Executive Officers and Board Members
SALT LAKE CITY, Friday, July 1, 2016

The Epilepsy Association of Utah is proud to announce four new Executive Officers and four new board members effective July 1, 2016.

The EAU welcomes Tyson Dewsnup as Chairman of the Board, a new position added this year. Tyson has served the EAU as AVP of Programs since February 2015. Tyson and his wife Ariana live in Eagle Mountain, Utah with their daughter Alexandra. Tyson is an IT Business Systems Analyst at Intermountain Healthcare. He has a Bachelor’s degree in HR Management and a MBA in Information Technology Management. He is currently working on his MHA and hoping to go to law school and earn his JD in Employment Law.

The EAU welcomes Candi Huff as President. Candi has served as AVP of Marketing for the EAU since July 2014. Candi and her husband Jason live in Draper, Utah with their daughter Madison and son Austin. Candi is a 23 year veteran of the mortgage lending industry and works as a Mortgage Loan Underwriter for Bay Equity, LLC from her home based office. Candi’s professional experience also includes outside sales, marketing, training and she is a

The EAU welcomes Doug Rice as Vice-President. Doug has been a member of the EAU board for close to one year, assisting the EAU’s Political Advocacy Committee in successful lobbying efforts to pass SB232, Rescue Medication in School. Doug and his wife, Julie, live in West Jordan with their daughter Ashley. Doug retires this week as Fire

The EAU welcomes Josh Hamilton as Secretary. Josh is a new face to the EAU board and we look forward to getting to know him. Josh and his wife Mylie live in South Jordan. Josh is an Operations Supervisor at Security Service Federal Credit union and brings a wealth of knowledge to the board.

“Our new board structure and Executive Team brings to Utah powerful leadership designed to take the EAU to the next level. After four plus years of incredible growth under the leadership of Past President Annette Maughan, the Epilepsy Association of Utah is a powerful force nationally in the epilepsy community and special needs circles. We intend to ride that momentum to further our goals of Education, Outreach and Awareness!” said Candi Huff, new

Four new board members round out the new structure at the EAU and include Rita Branch-Davis, Brooke Diamond, Dawn Voss and Paul Hill. The Epilepsy Association of Utah is thrilled with the new additions to our team and looks forward to a successful term for all.

ABOUT THE EPILEPSY ASSOCIATION OF UTAH

Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 100,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more. Visit http://epilepsyut.org for additional information.

Press Contact: Candi Huff
Email: candi@epilepsyut.org
Website: www.epilepsyut.org

Official Statement on Utah Bill HB75

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FOR IMMEDIATE RELEASE: Student Advocacy Groups Oppose Utah Bill HB75
SALT LAKE CITY January 16, 2016

Epilepsy Association of Utah, Hope 4 Children with Epilepsy and Utah Kids Foundation jointly announce our opposition to HB75 Epilepsy Training in Public Schools with its current language.

While we support the effort to address the critical issue of rescue medication in Utah schools, HB75 falls short in many areas. The bill does not truly address the ignoring of the doctor-guided and federally-mandated 504 Health Care Plan, which ensures the ADA student’s right to an education in the least restrictive environment. Throughout the collaborative Individualized Education Plan (IEP) process, the 504 Health Care Plan is put in place with input from qualified school personnel, medical professionals and the student’s guardian.

HB75 would institute the Intranasal Midazolam Authorization Form. We believe this document may be considered contrary to the Federal Individuals with Disabilities Education Act (IDEA), as the Health Care Plan on record would effectively be ignored.

Only ONE rescue medication is included in HB75: Intranasal Midazolam. This medication is prescribed for about 49% of students with epilepsy, leaving the remaining 51% of the student population with seizures no recourse to receive their emergency medication. We believe this would be a discriminatory practice in that some children with epilepsy would be supplied emergency support and others would not.

We also believe this bill perpetuates the stigma that epilepsy rescue medications are unsafe, when in fact caregivers with little to no medical training routinely administer them. HB75 lowers the standard of care for students with epilepsy by neglecting the needs of the ADA student, and compromising their safety, while trivializing their right to an education.

Although HB75 DOES allow for the delegation of medication to trained personnel, which we applaud, the practical application falls short by limiting input from the parent or physician. As has been experienced with the 2006 S.B. 8 Care of Students with Diabetes in School, staffs routinely fail to implement the law, forcing students with diabetes into homeschool situations and emergency room visits.

HB75 goes against the very core of morality and common sense in servicing the student in an emergency situation.

Signed
Epilepsy Association Of Utah
Board of Directors

Hope 4 Children with Epilepsy
Co-Founders

Utah Kids Foundation
Board of Directors

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ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 100,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more. Visit http://epilepsyut.org for additional information.

ABOUT HOPE 4 CHILDREN WITH EPILEPSY
We are parents of children with severe forms of epilepsy. Most have multiple types of seizures every day, varying in intensity and length from seconds to hours. The seizures take a toll on the children’s over-all health, ability to function, and quality of life. These children also have 10 times increased risk for sudden death. We actively advocate for the medical needs of children and adults with epilepsy. Visit http://hope4childrenwithepilepsy.com.

ABOUT UTAH KIDS FOUNDATION
Utah Kids Foundation’s mission is to support all special needs families in Utah by sharing information about doctors and resources in our community, facilitate the legal exchange of spare supplies, and to provide comfort and support when our children are inpatient. Currently serving nearly 2,000 families, we are now adding advocacy and providing inclusion in community events. Visit http://utahkidsfoundation.com/ for more information.